Dystonia Medical Research Foundation
Grantmaking foundation in Chicago, Illinois · EIN 95-3378526
- Illinois
- Chicago
- Philanthropy, Voluntarism and Grantmaking Foundations
- Philanthropy, Voluntarism and Grantmaking Foundations in Illinois
- Total giving
- $1.1MTax year 2025
- Total assets
- $7.1MLatest reported
- Latest IRS filing
- 2025Form 990 / 990-PF
Mission
THE FOUNDATION HAS THREE MAIN PURPOSES: (1)TO ADVANCE DYSTONIA RESEARCH BY AWARDING GRANTS TO BASIC, TRANSLATIONAL, AND CLINICAL INVESTIGATORS AND TO MEDICAL/SCIENTIFIC INSTITUTIONS COMMITTED TO FINDING THE CAUSE AND CURE FOR ALL FORMS OF DYSTONIA; (2)TO PROMOTE DYSTONIA AWARENESS BY SPONSORING WORKSHOPS AND SYMPOSIUMS FOR MEDICAL PROFESSIONALS AND PATIENTS, BY EDUCATING MEMBERS OF CONGRESS ABOUT DYSTONIA AND THE NEEDS OF THE DYSTONIA COMMUNITY, BY ADVOCATING FOR THOSE AFFECTED BY DYSTONIA AND THEIR FAMILIES, AND BY PRODUCING AND DISTRIBUTING EDUCATIONAL MATERIALS, BOTH PRINTED AND ELECTRONIC; AND (3)TO SPONSOR DYSTONIA PATIENT AND FAMILY SUPPORT GROUPS AND EDUCATION PROGRAMS INCLUDING THE CREATION AND PROMOTION OF VIRTUAL EDUCATION MEETINGS AND ELECTRONIC SOCIAL NETWORKS FOR DYSTONIA-AFFECTED PERSONS AND FAMILIES WHO ARE UNABLE TO ATTEND MEETINGS.
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| Yale University | $180K | 2024 |
| Duke University Medical Ctr | $160K | 2024 |
| University of California SF | $100K | 2024 |
| Virginia Polytechnic | $91K | 2024 |
| Baylor College of Medicine | $67K | 2024 |
Amounts are rounded. The full grantee list is available with a free account.
Website: www.dystonia-foundation.org
See the full profile. All grants with amounts and years, board and officers, contact details, giving patterns and your organization's fit score are available with a free GrantAuthority account.
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Source: IRS Form 990 and 990-PF filings, tax year 2025. Also see this organization on ProPublica Nonprofit Explorer.