Additional Ventures Foundation
Grantmaking foundation in Palo Alto, California · EIN 81-4429034
- California
- Palo Alto
- Philanthropy, Voluntarism and Grantmaking Foundations
- Philanthropy, Voluntarism and Grantmaking Foundations in California
- Grants itemized on the 990
- $11MTax year 2024
- Grants made
- 52Tax year 2024
- Total assets
- $220MLatest reported
- Latest IRS filing
- 2024Form 990 / 990-PF
Mission
SINGLE VENTRICLE SOURCE - ADDITIONAL VENTURES IS BUILDING THE WORLD'S LARGEST GENOMICS DATASET OF SINGLE VENTRICLE PATIENTS AND THEIR IMMEDIATE FAMILY MEMBERS TO FUEL RESEARCH TO DISCOVER THE CAUSE OF SINGLE VENTRICLE HEART DISEASE AS WELL AS THE GENETIC CONTRIBUTORS TO RELATED CO-MORBIDITIES AND COMPLICATIONS. THE DEIDENTIFIED DATA WILL BE MADE AVAILABLE FREE OF CHARGE TO ALL QUALIFIED RESEARCHERS THROUGH A SIMPLE APPLICATION PROCESS. AT LEAST 5,000 SINGLE VENTRICLE PATIENTS AND THEIR FAMILY MEMBERS WILL BE RECRUITED TO CONTRIBUTE A DNA SAMPLE TO BE WHOLE GENOME SEQUENCED, AND PATIENTS WILL BE ASKED TO SHARE CARDIAC MEDICAL RECORDS. A WEBSITE PLATFORM WILL ENABLE VIRTUAL RECRUITMENT WITH DNA KITS MAILED TO PARTICIPANTS' HOMES. IN-CLINIC RECRUITMENT AT A SMALL NUMBER OF SITES WILL INCREASE ENROLLMENT NUMBERS. IN 2023, ADDITIONAL VENTURES HIRED IQVIA TO BUILD THE PLATFORM AND GENCOVE TO OVERSEE GENETIC SEQUENCING AND DATA STORAGE. THE STUDY WILL LAUNCH IN 2025.
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| Monash University | $550K | 2024 |
| Carnegie Mellon University | $490K | 2024 |
| Irccs Azienda Ospedaliero Universitaria Di Bologna | $300K | 2024 |
| The Rector & Visitors of the University of Virginia | $280K | 2024 |
| Imperial College of Science Technology and Medicine | $260K | 2024 |
Amounts are rounded. The full grantee list (52 grants in 2024) is available with a free account.
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Palo Alto, CA · gave about $390M
Source: IRS Form 990 and 990-PF filings, tax year 2024. Also see this organization on ProPublica Nonprofit Explorer.