Myositis Association
Grantmaking foundation in Alexandria, Virginia · EIN 54-1660976
- Virginia
- Alexandria
- Philanthropy, Voluntarism and Grantmaking Foundations
- Philanthropy, Voluntarism and Grantmaking Foundations in Virginia
- Total giving
- $330KTax year 2024
- Total assets
- $2MLatest reported
- Latest IRS filing
- 2024Form 990 / 990-PF
Mission
The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| Research Foundation for SUNY | $100K | 2022 |
| University of Kansas | $80K | 2022 |
| Johns Hopkins University | $75K | 2022 |
| Vanderbilt Univ Medical Ctr | $25K | 2022 |
| Johns Hopkins Myositis Center | $12K | 2022 |
Amounts are rounded. The full grantee list is available with a free account.
Website: www.myositis.org
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Source: IRS Form 990 and 990-PF filings, tax year 2024. Also see this organization on ProPublica Nonprofit Explorer.