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The Marfan Foundation Inc

Grantmaking foundation in Port Washington, New York · EIN 52-1265361

Total giving
$1.5MTax year 2025
Total assets
$20MLatest reported
Latest IRS filing
2025Form 990 / 990-PF

Mission

THE MARFAN FOUNDATION SAVES LIVES AND IMPROVES THE QUALITY OF LIFE OF INDIVIDUALS WITH GENETIC AORTIC AND VASCULAR CONDITIONS INCLUDING MARFAN, LOEYS-DIETZ, AND VASCULAR EHLERS-DANLOS SYNDROMES WE PURSUE THE MOST INNOVATIVE RESEARCH AND MAKE SURE THAT IT RECEIVES PROPER FUNDING. WE CREATE AN INFORMED PUBLIC AND EDUCATED PATIENT COMMUNITY TO INCREASE EARLY DIAGNOSIS AND ENSURE LIFE-SAVING TREATMENT. WE PROVIDE RELENTLESS SUPPORT TO FAMILIES, CAREGIVERS, AND HEALTHCARE PROVIDERS.

Quoted from the foundation's IRS filing.

Giving by year

$1M2021
$650K2022
$1.1M2023
$1.2M2024
$1.5M2025

Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.

Top recipients

RecipientAmountTax year
Johns Hopkins University School of Medicine$350K2022
Duke University$220K2022
Baylor College of Medicine$100K2022
Cleveland Clinic Lerner Research Institute$100K2022
The Arnold P Gold Foundation$15K2022

Amounts are rounded. The full grantee list is available with a free account.

Website: www.marfan.org

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Source: IRS Form 990 and 990-PF filings, tax year 2025. Also see this organization on ProPublica Nonprofit Explorer.