Koolen-De Vries Syndrome Foundation
Grantmaking foundation in Wilmington, North Carolina · EIN 46-3208388
- North Carolina
- Wilmington
- Philanthropy, Voluntarism and Grantmaking Foundations
- Philanthropy, Voluntarism and Grantmaking Foundations in North Carolina
- Total giving
- $200KTax year 2024
- Grants made
- 2Tax year 2024
- Total assets
- $730KLatest reported
- Latest IRS filing
- 2025Form 990 / 990-PF
Mission
THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL (CONTINUED ON SCHEDULE O) GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| Cure Epilepsy | $25K | 2024 |
| St Jude | $20K | 2024 |
Amounts are rounded. The full grantee list (2 grants in 2024) is available with a free account.
Website: kdvsfoundation.org
See the full profile. All grants with amounts and years, board and officers, contact details, giving patterns and your organization's fit score are available with a free GrantAuthority account.
Similar foundations in North Carolina
- Atlantic Coast Conference
Charlotte, NC · gave about $740M - Duke University
Durham, NC · gave about $520M - Summit Foundation
Charlotte, NC · gave about $450M - Governing Council of the University of Toronto
Chapel Hill, NC · gave about $370M - North Carolina Partnership for Children Inc
Raleigh, NC · gave about $130M - High Point University
High Point, NC · gave about $110M
Source: IRS Form 990 and 990-PF filings, tax year 2024. Also see this organization on ProPublica Nonprofit Explorer.