The Ehlers-Danlos Society
Grantmaking foundation in New York, New York · EIN 38-2813140
- New York
- New York
- Philanthropy, Voluntarism and Grantmaking Foundations
- Philanthropy, Voluntarism and Grantmaking Foundations in New York
- Total giving
- $7MTax year 2025
- Total assets
- $9.6MLatest reported
- Latest IRS filing
- 2025Form 990 / 990-PF
Mission
THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLABORATIVELY TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| Stanford University | $330K | 2024 |
| Children'S Hospital Corporation | $130K | 2024 |
| Carle Foundation Hospital | $76K | 2024 |
Amounts are rounded. The full grantee list is available with a free account.
Website: www.ehlers-danlos.com
See the full profile. All grants with amounts and years, board and officers, contact details, giving patterns and your organization's fit score are available with a free GrantAuthority account.
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Source: IRS Form 990 and 990-PF filings, tax year 2025. Also see this organization on ProPublica Nonprofit Explorer.