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International Foundation for Cdkl5 Research

Grantmaking foundation in Wadsworth, Ohio · EIN 27-0950477

Total giving
$120KTax year 2024
Total assets
$980KLatest reported
Latest IRS filing
2024Form 990 / 990-PF

Mission

To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.

Quoted from the foundation's IRS filing.

Giving by year

$560K2020
$370K2021
$570K2022
$200K2023
$120K2024

Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.

Top recipients

RecipientAmountTax year
Boston Children's Hospital$190K2022
Baylor College of Medicine$110K2022
Children's Hospital Colorado$98K2022
Washington University School of Medicine$65K2022
Children's Hospital Philadelphia$50K2022

Amounts are rounded. The full grantee list is available with a free account.

Website: www.cdkl5.com

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Source: IRS Form 990 and 990-PF filings, tax year 2024. Also see this organization on ProPublica Nonprofit Explorer.