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Dravet Syndrome Foundation Inc

Grantmaking foundation in Cherry Hill, New Jersey · EIN 27-0924627

Total giving
$3.3MTax year 2025
Total assets
$9.8MLatest reported
Latest IRS filing
2025Form 990 / 990-PF

Mission

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.

Quoted from the foundation's IRS filing.

Giving by year

$330K2020
$440K2021
$690K2022
$960K2023
$2.5M2024
$3.3M2025

Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.

Top recipients

RecipientAmountTax year
Children's Hospital of Philadelphia$1M2024
Regents Of The University Of Michigan$500K2024
Brown University$250K2024
University of Colorado Denver$75K2024
Coriell Institute for Medical Research$13K2024

Amounts are rounded. The full grantee list is available with a free account.

Website: www.dravetfoundation.org

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Source: IRS Form 990 and 990-PF filings, tax year 2025. Also see this organization on ProPublica Nonprofit Explorer.