Foundation for Angelman Syndrome Therapeutics
Grantmaking foundation in Downers Grove, Illinois · EIN 26-3160079
- Illinois
- Downers Grove
- Philanthropy, Voluntarism and Grantmaking Foundations
- Philanthropy, Voluntarism and Grantmaking Foundations in Illinois
- Total giving
- $3.7MTax year 2024
- Grants made
- 9Tax year 2024
- Total assets
- $45MLatest reported
- Latest IRS filing
- 2024Form 990 / 990-PF
Mission
ANGELMAN SYNDROME (AS) IS A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS AND SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE OF GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE AND AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY AND INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING IS IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUAL'S ABILITY TO LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS IS AN ORGANIZATION OF FAMILIES AND PROFESSIONALS DEDICATED TO FINDING A CURE FOR AS AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, AND COMMUNITY SUPPORT. FAST IS COMMITTED TO ASSISTING INDIVIDUALS LIVING WITH AS TO REALIZE THEIR FULL POTENTIAL AND QUALITY OF LIFE.
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| University of Pennsylvania | $5.9M | 2024 |
| Boston Children'S Hospital | $470K | 2024 |
| Rush University Medical Center | $320K | 2024 |
| Duke University | $320K | 2024 |
| Regents of the University of California Davis | $270K | 2024 |
Amounts are rounded. The full grantee list (9 grants in 2024) is available with a free account.
Website: www.cureangelman.org
See the full profile. All grants with amounts and years, board and officers, contact details, giving patterns and your organization's fit score are available with a free GrantAuthority account.
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Source: IRS Form 990 and 990-PF filings, tax year 2024. Also see this organization on ProPublica Nonprofit Explorer.