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Myotonic Dystrophy Foundation

Grantmaking foundation in Oakland, California · EIN 20-5014628

Total giving
$1MTax year 2024
Total assets
$5.8MLatest reported
Latest IRS filing
2024Form 990 / 990-PF

Mission

To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

Quoted from the foundation's IRS filing.

Giving by year

$120K2020
$550K2021
$1M2022
$700K2023
$1M2024

Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.

Top recipients

RecipientAmountTax year
Unversity at Albany$300K2022
Sapienza University of Rome$190K2022
Virginia Commonwealth Univers$190K2022
University of Florida$160K2022
Grimn$110K2022

Amounts are rounded. The full grantee list is available with a free account.

Website: www.myotonic.org

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Source: IRS Form 990 and 990-PF filings, tax year 2024. Also see this organization on ProPublica Nonprofit Explorer.