National Fabry Disease Foundation
Grantmaking foundation in Hillsborough, North Carolina · EIN 20-2944028
- North Carolina
- Hillsborough
- Philanthropy, Voluntarism and Grantmaking Foundations
- Philanthropy, Voluntarism and Grantmaking Foundations in North Carolina
- Total giving
- $130KTax year 2025
- Total assets
- $270KLatest reported
- Latest IRS filing
- 2025Form 990 / 990-PF
Mission
TO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND PROVIDED AN OPPORTUNITY FOR TREATMENT IN TIME TO AVOID A DIMINISHED QUALITY-OF-LIFE AND LIFE-THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES, TO PHYSICIANS, AND TO THE PUBLIC; TO PROVIDE SUPPORT AND ASSISTANCE TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES; AND TO CONDUCT AND PROMOTE RESEARCH TO IMPROVE MANAGEMENT AND TREATMENT FOR FABRY DISEASE.
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| Fabry Support and Information Group | $10K | 2023 |
Amounts are rounded. The full grantee list is available with a free account.
Website: www.fabrydisease.org
See the full profile. All grants with amounts and years, board and officers, contact details, giving patterns and your organization's fit score are available with a free GrantAuthority account.
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Source: IRS Form 990 and 990-PF filings, tax year 2025. Also see this organization on ProPublica Nonprofit Explorer.