Dup 15q Alliance
Grantmaking foundation in Matthews, North Carolina · EIN 20-0751232
- Total giving
- $600KTax year 2025
- Total assets
- $6.4MLatest reported
- Latest IRS filing
- 2025Form 990 / 990-PF
Mission
DUP15Q ALLIANCE EMPOWERS INDIVIDUALS LIVING WITH DUP15Q SYNDROME AND OTHER RELATED RARE DISEASES TO REACH THEIR FULL POTENTIAL BY ADVANCING BREAKTHROUGH RESEARCH AND LIFE-CHANGING THERAPEUTIC TREATMENTS, SUPPORTING FAMILIES AFFECTED BY DUP15Q, AND PROMOTING ADVOCACY. AS THE ONLY PATIENT ADVOCACY GRUP FOCUSED ON DUPLICATION 15Q SYNDROME, OUR ORGANIZATION IS DEVOTED TO ADVANCING RESEARCH INTO THE SYNDROME, SUPPORTING AND PROMOTING THE WORK OF SCIENTISTS, CLINICIANS, AND DRUG DEVELOPMENT COMPANIES IN THE SEARCH FOR TREATMENTS THAT WILL ALLEVIATE THE SERIOUS AND MULTIPLE SYMPTOMS OF THE DISORDER. WE ALSO WORK TO EDUCATE FAMILIES ABOUT THE SYNDROME, SUPPORTING THEM WITH INFORMATION, AND CONNECTING FAMILIES TOGETHER FROM THE DAY THEY FIRST REGISTER WITH US, SO THAT THEY CAN SHARE INFORMATION AND SUPPORT EACH OTHER. WE OFFER FAMILIES OPPORTUNITIES TO EDUCATE THEIR OWN FRIENDS AND FAMILIES AND THEIR COMMUNITIES ABOUT DUPLICATION 15Q SYNDROME, RAISING AWARENESS ABOUT THIS RARE CONDITION.
Giving by year
Totals by tax year, rounded to two significant figures. Years without a reported total show the sum of grants itemized on the filing.
Top recipients
| Recipient | Amount | Tax year |
|---|---|---|
| Various | $83K | 2022 |
| Foundation for Angelman Syndrome | $39K | 2022 |
| Regents of the Univ of California | $13K | 2022 |
Amounts are rounded. The full grantee list is available with a free account.
Website: www.dup15q.org
See the full profile. All grants with amounts and years, board and officers, contact details, giving patterns and your organization's fit score are available with a free GrantAuthority account.
Similar foundations in North Carolina
- Dont Ever Give Up Inc
Cary, NC · gave about $24M - Anglo-American Charitable Foundation Ltd
Smithfield, NC · gave about $5.1M - Lenoir-Greene County Partnership for Children
Kinston, NC · gave about $2.6M - Asheville Area Chamber of Commerce Community Betterment Foundation
Asheville, NC · gave about $2.1M - Carolina Partnership for Reform Inc
Raleigh, NC · gave about $1.2M - United Way of Davidson County Inc
Lexington, NC · gave about $750K
Source: IRS Form 990 and 990-PF filings, tax year 2025. Also see this organization on ProPublica Nonprofit Explorer.